MORE INFORMATION
There are a number of information sources about Epilepsy. Here is a partial list, and I welcome suggestions for other things to be added here.
- Epilepsy Foundation of America (EFA)
8000 Corporate Drive, Suite 120
Landover, MD 20785
1-800-225-6872 or 1-800-EFA-1000
www.efa.org
- The Epilepsy Connection
The Epilepsy Connection Email all inquiries to: motzko@ix.netcom.com
Paulette L. Motzko, Executive Director & Founder
Orange County, CA 714-998-0391
- Epilepsy Canada
1470 Peel St., Suite 745
Montreal, Quebec, Canada
H3A 1T1
(514) 845-7866
- National Institute of Health
1-800-352-9424 E-mail ntsa@aol.com
- Additional information on the Ketogenic diet can be obtained from: The Johns Hopkins Pediatric Epilepsy Center, (410)955-9100 or The Charlie Foundation to Help Cure Pediatric Epilepsy, (800)FOR-KETO.
What books are available on Epilepsy?
- EPILEPSY AND THE FAMILY by Richard Lechtenberg. Harvard Univ. Press, 79 Garden Ave, Cambridge, MA 02138-1311
- LIVING WELL WITH EPILEPSY by Robert J. Gumnit, Demos Publications, 1990, 156 Fiftth Ave, NY, NY 10010
- EPILEPSY AND YOU, by Frank O. Volle and Patricia A. Heron
- DOES YOUR CHILD HAVE EPILEPSY? by J.E. Jan, R.G. Ziegler, G. Erba, Austin PRO-ED Press, 5341 Industrial Oacks Blvd, Austin, TX 78735
- CHILDREN WITH EPILEPSY: A PARENTS GUIDE, by Helen Reisner, Woodbine House, 5615 Fishers Lane, Rockville, MD 20852
- ONE MIRACLE AT A TIME, HOW TO GET HELP FOR YOUR DISABLED CHILD - FROM THE EXPERIENCE OF OTHER PARENTS, by Irving Dickman, PACER Center, Inc 4826 Chicago Ave, Minneapolis, MN 55417
- THE EPISODE, by Richard Pollak * This one is listed as fiction
- HAVING EPILEPSY, THE EXPERIENCE AND CONTROL OF ILLNESS by Joseph Schneider and Peter Conrad, Temple Univ Press, Broad and Oxford Streets, Philadelphia, PA
- PSYCHOPATHOLOGY IN EPILEPSY, SOCIAL DIMENSIONS by Steven Whitman and Bruce Hermann, Oxford University Press, 16-00 Pollitt Drive, Fair Lawn, NJ 07419-2799
- SEIZURES AND EPILEPSY IN CHILDHOOD: A GUIDE FOR PARENTS by John Freeman, EileenVining and Diana Pillas, The John Hopkins University Press, 701 West 40th St, Balitimore, MD 21211
- A GUIDE TO UNDERSTANDING AND LIVING WITH EPILEPSY, Orrin Devinsky, F.A. Davis Company, 1915 Arch Street, Philadelphia, PA 19103
- BRAINSTORMS: EPILEPSY IN OUR WORDS, by Steven Schachter, Raven Press 1185 Avenue of the Americans, NY, NY 10036
- THE BRAINSTORMS COMPANION: EPILEPSY IN OUR VIEW, by Steven Schachter, Raven Press, 1185 Avenue of the Americas, NY, NY 10036
- THE EPILEPSY DIET TREATMENT: AN INTRODUCTION TO THE KETOGENIC DIET (Demos Press, 1994) by John Freeman, Millicent Kelly, and Jennifer Freeman
- CHALLENGE OF EPILEPSY by Sally Fletcher (Aura Publishing Company/20 Sunnyside Ave., #A150/Mill Valley, CA 94941)
- New Release:"Coping with Mild Traumatic Brain Injury."Authors: Dr. Diane Roberts Stoler, Ed.D., Barbara Albers Hill
"Very few books about brain injury, if any, are as comprehensive and far-reaching as Dr. Diane Stoler's. Coping With Mild Traumatic Brain Injury answers many questions haunting survivors and family members. I strongly recommend this text as required reading for anyone affiliated with the brain injury community." - George A. Zitnay, Ph.D. President and CEO, Brain Injury Association
Brief Description: This book is a concise description of the various symptoms and consequences related to a mild traumatic brain injury. Interlaced in each chapter are true life stories, conventional and alternative treatment approaches and practical information.
Visit their website at: http://health-helper.com/
Special Book Offer: -- Especially for parents and caregivers of children with neurological problems
- "What To Do About Your Brain-Injured Child." Or Your Brain-Damaged, Mentally Retarded, Mentally Deficient, Cerebral-Palsied, Spastic, Flaccid, Rigid, Epileptic, Autistic, Atetoid, Hyperactive, Down's Child. By Glen Doman, Founder of The Institutes for the Achievement of Human Potential, Philadelphia, PA.
"A breakthrough book that brings real hope to thousands of children"
Where can I find information on the Internet about Epilepsy?
There are two Epilepsy-related mailing lists: "Epilepsy-List" is intended for general discussions about Epilepsy and seizure disorders. Most traffic is from people living with Epilepsy or their friends and family. The companion list, "Epilepsy-PRO" is intended for discussions about Epilepsy and seizure disorders by professionals working in this field. To find out about these lists, send mail to listserv@calvin.dgbt.doc.ca and include the command lines "info epilepsy-list" and/or "info epilepsy-pro".
Mass General Hospital and Harvard sponsor a neuro forum where people can ask questions about seizure disorders, meds, etc. The address is http://dem0nmac.mgh.harvard.edu/neurowebforum and you may try http://dem0nmac.mgh.harvard.edu/epilepsy/epihome.html. [Note: that is a zero]
The Charles A. Dana foundation, which has opened a website at http://www.dana.org/, supports brain research and school reform by means of grants and public education initiatives.
There's a fairly extensive description of Depakote at http://www.fairlite.com/ocd/medications/depakote.shtml and this may be a good reference for information on many medications.
Another reference for drug information is also available.
Canine Epilepsy
The Epilepsy Society of Northwest Florida has a home page.
The Epilepsy Association of Metro Toronto also has a home page.
Your Child and Neurosurgery contains several chapters on the surgical treatment of children with medically refractory epilepsy.
Epilepsy Support/Education Organizations
MGH Epilepsy Surgery
Assorted Medical Links
SURGERY FOR EPILEPSY
http://ccfadm.eeg.ccf.org/~tom/ cv.out
AECOM/MMC Epilepsy Home Page
Neurosciences Internet Resource Guide
Department of Neurological Surgery
MCG-Neurology
University Medical Center
Tammi's Epilepsy Page
JHMI-InfoNet: Patient Advocacy Groups
Neurology/Neuroscience
Yale Section of Neurosurgery
UNM Neurosurgery Associates
Basic Sciences
PSI PET Program
About the CVRC
http://www.med.stanford.edu/touchstone/listserv.html
ftp://ftp.win-uk.net/pub/users/copernic/medical.resources
http://www.ibmpcug.co.uk/~copernic/meda.htm
Neuropsychology Central
EpiNet
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>> People With Epilepsy
>> Types of Seizures
>> Causes & Triggers
>> First Aid for Seizures
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EFWT gladly accepts donations throughout the year. Donations are accepted here or you may contact the office to make other arrangements. Here is what your contribution can accomplish.
* $10 pays for a month’s worth of bus tickets for a client that can not drive
* $75 enables a client with no source of reimbursement to obtain an EEG
* $150 buys a two week supply of most seizure medication
* $500 enables a client with no source of reimbursement to obtain an MRI
* $1,000 funds the education program of EFWT for a school year
A donation to EFWT can make a critical difference in people’s lives. Your assistance allows us to educate people with epilepsy, their loved ones, and the public at large about epilepsy.
Your support will assist us in providing all of our services free of charge. |
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